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Caregiving Pressures Mount For Families Of Those With IDD

by Michelle Diament | January 22, 2024

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With fewer and fewer services available for individuals with developmental disabilities, a survey of thousands of caregivers across the country finds families increasingly strained.

Diagnosed Developmental Disabilities in Children Aged 3–17 Years:
United States, 2019–2021

Benjamin Zablotsky, Ph.D., Amanda E. Ng, M.P.H., Lindsey I. Black, M.P.H., and Stephen J. Blumberg, Ph.D.

Human and Civil Rights


The history of living with a disability in the United States has largely been one of discrimination, segregation, and exclusion from education, work, housing, and even from routine daily activities.

Fortunately, today people with intellectual and developmental disabilities (IDD) have the same basic legal, civil, and human rights as other citizens. The U.S. Constitution, federal laws, and federal court decisions have established these rights. However, despite the tremendous advances, limitations of laws and regulations, poor enforcement of the laws, limited funding of programs, disregard for binding legal precedent, and societal prejudices keep many people with disabilities from being fully included in our society. There is still a lot of work to do in order to make true community integration and recognition of civil rights a reality for ALL, including those with the most significant disabilities.

You can learn more about The Arc’s position on civil rights by reading our position statement.


Join Our Fight for Equal Rights for All

The Arc fights every day to protect civil rights and access to vital programs, such as Medicaid, for those with intellectual and developmental disabilities (I/DD). But we can’t do it alone! We need the help of people with I/DD, their families, and allies of the cause.

Sign up today to receive updates on our movement, take action, and make a difference in the lives of people with disabilities.

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The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Our impact

With your help, we are working every day to build a future of inclusive work, play, worship, community, travel, and more.

If you are looking for an item that was posted on our website please check our Archive page under Resources

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